Acoustic Neuroma Association of Canada

Pearl · Joined: 16 May 2008 Posts: 2 Location: Metro Boston, MA USA

Hi all,

Just wanted to say hi "north of the border" and let you know that I look forward to chatting with you all. I am also a Moderator on the ANAUSA website. Hoping to share thoughts/experiences/insight with you all....

Wellness to you all,
Phyl
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1cm x 7mm x 4mm AN
Treated by Cyberknife Radiosurgery at Beth Israel Hosp, Boston, MA

Moderator of ANA USA Discussion Forum Website

joef · Joined: 16 May 2008 Posts: 1

Hi Phyl .... Very Happy

Pearl · Joined: 16 May 2008 Posts: 2 Location: Metro Boston, MA USA

OMG!

I know you! Cool

Ok, time to brag about JoeF... he's also a Mod on the ANAUSA website... a microsurgical AN patient, with BAHA hearing device. So, hoping others chime in to say hello.

BTW, due for a trip to Toronto. Have family in Markham (my spouse's family). Hoping to get there sooner than later.

Phyl
_________________
1cm x 7mm x 4mm AN
Treated by Cyberknife Radiosurgery at Beth Israel Hosp, Boston, MA

Moderator of ANA USA Discussion Forum Website

Dr Louie · Joined: 16 May 2008 Posts: 4 Location: Ont Canada

Hi Phyl,

I only live less than 1 hr from Toronto. When are you coming?

Anne Marie aka Yardtick

Daisy Head Mazy · Joined: 16 May 2008 Posts: 4 Location: Oregon State, USA

I have this image in my mind-that you are all there on the Great Lake with your ears a ringing. There you are all floating in Kayaks. Joef is giving directions. Pearl has just put some popcorn on her lure and Dr. Louie has put carrots sticks on the hook as bait- while the rabbit nose is twitching. So any fish biting while you are all up there in my homeland kayak fishing? LOL

I got the results of my 9 month MRI and the residual tumor they left on my facial nerve completely receded and left the radar. Very Happy

I also located a neuromuscular facial retraining therapist and she will be flying into Portland to help other ANA patients. Cool

How about up there in my homeland we get out the paddles and have an on-the-water celebration? It was so cold here in Oregon Rolling Eyes

, last week, they were calling it JUNEuary!
So are any of you going to the ANAC symposium up there? I see Dr. Nedzelski is the key note speaker
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4cm R/S @ Stanford U Aug 07, Dr. R. Jackler, Dr. G. Harsh, Canadian Assistant Dr. Sumit Agrawal. SSD, 3/6 H/B facial scale & in neuromuscular facial retraining therapy. 99% balance regained. 9 Month MRI residual tumor receded & gone. Canadian in the USA.

Daisy Head Mazy · Joined: 16 May 2008 Posts: 4 Location: Oregon State, USA

...Hey they cut off the bottom of my post. Shocked

I guess they don't allow us to ramble as they do on the ANA site. Confused

continued...
I will not be heading to Ontario but I hope to get to BC sometime this June. I might even show up to a ANAC support group meeting in Victoria for fun- schedule permitting.

Joef, Joef
_________________
4cm R/S @ Stanford U Aug 07, Dr. R. Jackler, Dr. G. Harsh, Canadian Assistant Dr. Sumit Agrawal. SSD, 3/6 H/B facial scale & in neuromuscular facial retraining therapy. 99% balance regained. 9 Month MRI residual tumor receded & gone. Canadian in the USA.

Daisy Head Mazy · Joined: 16 May 2008 Posts: 4 Location: Oregon State, USA

Joef, Joef! Look you got a bite! Are we having fried fish with chocolate covered popcorn for dinner? LOL

Keep Moving Forward
_________________
4cm R/S @ Stanford U Aug 07, Dr. R. Jackler, Dr. G. Harsh, Canadian Assistant Dr. Sumit Agrawal. SSD, 3/6 H/B facial scale & in neuromuscular facial retraining therapy. 99% balance regained. 9 Month MRI residual tumor receded & gone. Canadian in the USA.

Daisy Head Mazy · Joined: 16 May 2008 Posts: 4 Location: Oregon State, USA

this is not posting all my text?
Cont.
and special HUGS to Dr. Louie.

Daisy
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4cm R/S @ Stanford U Aug 07, Dr. R. Jackler, Dr. G. Harsh, Canadian Assistant Dr. Sumit Agrawal. SSD, 3/6 H/B facial scale & in neuromuscular facial retraining therapy. 99% balance regained. 9 Month MRI residual tumor receded & gone. Canadian in the USA.

Dr Louie · Joined: 16 May 2008 Posts: 4 Location: Ont Canada

Hugs right back a you Dasiy!! Laughing

Donnalynn · Joined: 11 Aug 2009 Posts: 8 Location: Sherwood Park AB

Hey Phylie-girlie is that you??? Wink

I just came on the Canadian site tonight for the first time and saw you! How neat is that!
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Med. AN removed Jan/08. Had surgery @HEI in L.A. SSD, balance issues getting better. Trying to heal my brain. All in all I'm very grateful for life and living!

Donnalynn · Joined: 11 Aug 2009 Posts: 8 Location: Sherwood Park AB

Hey Anne Marie it's me !!!!! I just came on here tonight! So good to see you here to... after all ....ummmp....cough....cough ...we are Canadians Wink

Donnalynn
_________________
Med. AN removed Jan/08. Had surgery @HEI in L.A. SSD, balance issues getting better. Trying to heal my brain. All in all I'm very grateful for life and living!

Donnalynn · Joined: 11 Aug 2009 Posts: 8 Location: Sherwood Park AB

Hey Anne Marie it's me !!!!! I just came on here tonight! So good to see you here to... after all ....ummmp....cough....cough ...we are Canadians Wink

Donnalynn
_________________
Med. AN removed Jan/08. Had surgery @HEI in L.A. SSD, balance issues getting better. Trying to heal my brain. All in all I'm very grateful for life and living!

Marianna K · Joined: 22 Oct 2008 Posts: 11

Hi ladies!

I am here too Wink

Marianna

Vivian B · Joined: 14 Dec 2009 Posts: 18

Hi Everbody,

I posted under W and W but wanted to tell everybody how glad I am that this forum has become more active and I see that some of us are very busy now on two forums. That's great. Anyway, I am still trying to figure out this forum and where to post the size of my AN and so on but just wanted to welcome myself to all of you.

Vivian(Toronto)