My Uninvited Guest: Judit's Story
In early 2020, an unexpected MRI revealed a benign acoustic neuroma, setting Judit on a journey through missteps, international research, and finally, gamma knife treatment—with hope, support, and hard-earned lessons along the way.
The Silver Lining: Nicole's Journey with an AN
After noticing numbness and hearing loss, a veteran nurse discovered she had a 3 cm acoustic neuroma compressing her brainstem. Facing urgent surgery and CyberKnife radiosurgery, she navigated treatment with courage and optimism. Today, she enjoys retirement, improved balance, and the joy of life post-recovery.
My Acoustic Neuroma Experience: Bill's Journey Down a Bumpy Road
“After experiencing double vision while driving, he was unexpectedly diagnosed with an acoustic neuroma in his good ear. With hearing preservation a priority, he chose Gamma Knife at Toronto Western Hospital in 2013 and again in 2018 after regrowth. Alongside balance challenges, hearing loss, and taste changes, he continues to adapt with vestibular therapy, hearing technology, and Nordic pole walking. Now 79, he remains grateful for life’s possibilities and contributes to a Mayo Clinic study on acoustic neuroma quality of life.
Alex's Story: A Doctor Becomes a Patient
After hearing loss and buzzing in his right ear, he found invaluable support through ANAC and the Kitchener–Waterloo Support Group. Following careful consultations with Dr. Zadeh, Dr. Gentili, and Dr. Tsang at Toronto Western Hospital, he chose Gamma Knife radiosurgery in June 2018. Despite some pain and pin-site bleeding, he was back on the golf course the next morning. With continued hearing loss and buzzing, he remains grateful to his medical team and ANAC for their care and support.
Marilyn's Acoustic Neuroma Journal: Options and Treatment
Her dream of becoming fluent in ASL was interrupted by dizziness, nausea, and fear. What began as a balance disorder diagnosis soon revealed itself to be something far more life-changing: an acoustic neuroma. With the support of ANAC, her husband, and relentless research, she faced difficult decisions and ultimately found resilience, healing, and hope.
