Climbing Mountains, Embracing Technology: Living with Acoustic Neuroma
After acoustic neuroma surgery left him with single-sided deafness and balance issues, he’s faced challenges from stumbling into walls to nearly toppling off a ladder—but he hasn’t let it hold him back. With determination, he trained to hike Norway’s Pulpit’s Rock and conquered the 8-hour climb. Alongside these adventures, he shares how the Bonebridge implant has improved his hearing and energy, offering an honest look at both the pros and cons of life after surgery.
Shelley's Story: A Journey Toward an Acoustic Neuroma Treatment Plan
What began as a persistent earache led to the discovery of a rare acoustic neuroma. Faced with complex treatment options, she navigated a maze of research, second opinions, and international technologies, ultimately finding guidance and support through ANAC. Her story is one of informed decision-making, perseverance, and taking control of her own path to preserve hearing, balance, and quality of life.
The Silver Lining: Nicole's Journey with an AN
After noticing numbness and hearing loss, a veteran nurse discovered she had a 3 cm acoustic neuroma compressing her brainstem. Facing urgent surgery and CyberKnife radiosurgery, she navigated treatment with courage and optimism. Today, she enjoys retirement, improved balance, and the joy of life post-recovery.
Trekking to the 2018 Symposium: Elizabeth’s Pathway to Managing Her AN
Elizabeth, a retired kindergarten teacher, was diagnosed with a small acoustic neuroma in 2018 after years of vision and balance challenges. With determination and support, she embraced vestibular therapy, adaptive technologies, and community connections to create a “new normal” that allows her to stay active and engaged.
What a Difference a Day Makes! Ruth's AN Journey
Diagnosed with a large acoustic neuroma in 2017, 49-year-old Ruth faced a year of emotional turmoil before undergoing successful surgery at Toronto Western. With the support of her family, surgeon, and the AN community, she’s embraced recovery and now encourages others to stay positive and trust their strength — because truly, what a difference a day makes.
Mitzi Jo's Story: So What! I’ve Got a Brain Tumour
After sudden hearing loss in 2017, a private MRI confirmed what doctors had dismissed—Mitizi Jo had a large acoustic neuroma. Fueled by frustration, humour, and fierce determination, she found strength through research, support from ANAC, and the care of her medical team. Her journey is a testament to self-advocacy, resilience, and the power of laughter.
Shared Wisdom: Dr. Rutka’s Guidance and Judy Haust’s Acoustic Neuroma Story
When Judy Haust was first diagnosed with an acoustic neuroma, Dr. John Rutka’s thoughtful letter outlining her diagnosis and treatment options became a source of reassurance and clarity. Years later, Judy reflects back in her reply, sharing how his guidance shaped her decision to embrace a “wait and scan” approach, and how ANAC’s support network strengthened her journey. Together, their words highlight the balance between medical expertise and lived experience in navigating acoustic neuroma.
